HS Scholarship

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So AbbVie emailed me and asked me to post this scholarship opportunity. If you are going to college (Undergrad or Grad School) and you have HS you should really look into this scholarship.

BBVIE IMMUNOLOGY SCHOLARSHIP OVERVIEW

·        The scholarship is available to students living with inflammatory diseases*, including psoriasis or HS, who are seeking an undergraduate or graduate degree from an accredited US university/college or trade school, and who plan to enroll for the 2017-2018 school year.

·        Forty-five AbbVie Immunology Scholars will be selected to receive $15,000 each for use during the 2017-2018 academic year.

·        Applicants will be judged based on academic excellence, community involvement, written response to an essay question, and ability to serve as a positive role model for the community.

Key dates and deadlines are as follows:

Applications will be made available in December 2016 on www.AbbVieImmunologyScholarship.com.

Applications must be submitted by Friday, March 31, 2017.

Winners will be notified by Friday, April 28, 2017.

More information on the AbbVie Immunology Scholarship, the application process, and eligibility criteria can be found at www.AbbVieImmunologyScholarship.com.

New Beginnings

I feel like a weight has been lifted off of me today. I have been struggling awhile and its finally done. Today was the last day at my job. It was time for me to go. I will miss my students and co workers but I have a new opportunity in the new year. With the new year approaching my hair needs to come out tomorrow. I don’t feel like taking it out because washing and styling my hair can be a challenge. My arms get tired and by my left arm being webbed I can not wash with ease. I will use this Christmas break to do my hair in sections. I remember when I use to have other people doing my hair and it wasn’t want I wanted but I had no choice at the time. My arms were out of commission. I remember to times and I remind myself to be thankful that I can do my own hair. Yes I am not as fast and efficient as I use to be but I can do it myself. I like the hair but its too much. Im not use to having all of this hair. Im glad I didn’t put all of the packs in. Im ready to take it out and try something new in the new year. With a new job I want to do something different with my hair, but I don’t know what.

Remicade Rechallenge

Later on today I will receive my Remicade infusion! I haven’t had an infusion since July 24th. My HS has been flaring for the pass 3 months but I was to tolerate it surprisingly. Dr. Hamzavi had me take 60mg of Prednisone yesterday to see if it can prevent the Wells from occurring. I guess we will see. The first dose of Prednisone was okay but the second one has my legs in so much pain. I don’t remember being in pain with Prednisone in the pass. I just took my third dose an hour ago along with some Motrin. I will give an update on how this infusion goes.

Happy Birthday to Me

Today is the first birthday in 4 years where I was not bandaged. I just thank God for that. My family and friends came over and we played Black Card Revoked. My aunt made me a homemade Carmel cake, my husband bought pizza and cupcakes. I’m glad I was able to take my mind off of HS for a while. It’s been almost 13 weeks since my Remicade Infusion and I’m doing ok considering. I’m waiting for my insurance to approve my treatment. Hopefully they approve it soon because my left thigh is pretty angry.

Wells Syndrome

So I may have a condition called Wells Syndrome. I keep getting these itchy, painful, burning bumps all over my body. I had to start wrapping my arms and putting Telfas on my back so that my clothes wouldn’t rub against them. Dr. Hamvazi thinks I developed it because of Remicade. My biopsy came back positive and now it’s been sent to another lab to confirm. I’ve been on Remicade for almost 2 years now and it would suck if I have to stop. I’m on Prednisone right now and I have to push back my Remicade for a month. Mind you I was suppose to have Remicade on Sunday. Now I will have to go 10 weeks without an infusion. I am not a happy camper right now.

9 Weeks without Remicade

It’s been 9 weeks since my last Remicade infusion and I am flaring! By me having the throat infection and the staph infection I wouldn’t get my infusion. Along with flaring I noticed my stomach pains coming back. Dr. Hamvazi said that I went too long I between infusions. I work at an Elementary School and getting germs from children is expected. Im so glad my infusion is today. I also need to look into getting a gastroenterologist. 

I Can’t Win for Losing

I am still horse but my voice is 85% back. I went to the doctor yesterday and the doctor said “ahhhhh I can hear that you are sick in your voice” I told her that I was getting over a throat infection but that’s not why I was there to see her. I had a Hugh rash on my arm and I wanted to know what it was before I went on my road trip. She said it looked like a bug bite that got infected. I noticed the spot Thursday morning and got it seen about Friday morning. It was itchy and painful. She said it looked like a Staph infection and gave me antibiotics. I’m still in pain but at least the meds are working. I’m glad I listened to my body.